(201) 996-9100 Bergen / (201) 533-4407 Hudson
hip hip Hooray!

hip hip Hooray!

hip hip Hooray!

 

Several months ago, hip’s COVID-19 Community Response Program funded Fusion software for N.M., a longtime hip consumer. N.M. requested the software so she could take some online courses and find additional employment. As she is a hardworking single mother, we were happy to assist her by purchasing this special technology to help further her career.

We learned recently that N.M. has obtained employment with the NJ Contact Tracing Department! She was able to go through the entire application process and training because of the software purchased. N.M. is so happy and thanked everyone at hip for their part in this process! We are thrilled the program was able to help her and look forward to helping many more consumers throughout the year.

 

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Annual Report 2020

Annual Report 2020

ANNUAL REPORT

October 1, 2019 – September 30, 2020

Empowering People with Disabilities to Achieve Independent Living through Outreach, Advocacy and Education.

Heightened Independence & Progress
2019-2020 Annual Report

November 2020

Greetings,

I’m reminded of our celebrations of 2019 when we had a great Annual Meeting, a wonderful Holiday Party, and the planning committee was excited about our plans for hip’s 40th Anniversary Gala. Suddenly everything changed when the COVID Crisis restricted our activities and made us aware of the dangers of the virus and the importance of following CDC guidelines.

As you will see in the pages of our Annual Report, hip was able to exercise our contingency plans and the staff quickly adapted to working remotely to serve our consumers without missing a day.

With the help provided by The CARES Act we were able to expand our programs and offer equipment to enable people to remain in their homes comfortably. We were also able to provide rental and utility assistance, expand people’s access to communications and provide much-needed food assistance to a wide variety of consumers. Perhaps the most important service that we provided was to connect with people who were otherwise isolated through our frequent consumer wellness calls.

I have been impressed by the team spirit shown by the staff and their willingness to find creative solutions to assist people with disabilities to remain independent. I also want to express my appreciation to my fellow Board members whose commitment to the hip mission has made my role as Chair a worthwhile experience.

Sincerely,

Anna P.Navatta

Anna P. Navatta

Board of Trustees 

Karen Canellos.
Lottie Esteban.
Betty A. Fetzer, Vice Chair.
Richard M. Hodgman, Treasurer.
Roy Lippin.
Anna P. Navatta, Board Chair.
Hyacinthe Nkurunziza.
Anne Marie Prendergast.
Joseph Tomasko, Secretary.
Mary Turner.

Ex officio: Brian Fitzgibbons, President/CEO .

Hudson County Advisory Board.

 Ivis Alvarez, Chair.
Janet Jones.
Victor Muniz.
Carmen Reyes.
Michael Smith.
Marianne Valls .

We are pleased to present the accomplishments of our Centers for Independent Living during FY 2020. Many of the initiatives have been administered by both the Bergen and Hudson CILs, while others are specific to one individual site. It has been our privilege to meet the independent living needs of the disability community for over four decades.

“I like the work you do. Everyone is nice and talks to me. You help me with a lot of my things and the other girls help too. I give the office 100 out of 10 stars. Thank you for everything.”
Hudson Consumer.

“Your agency provided me with a chair lift that enabled me to use my bedroom and bathroom. Maria was marvelous, kind and efficient – I couldn’t believe how fast she got everything done! Thank you from the bottom of my heart.”
Bergen Consumer.

hip was there for us in our time of need. They helped my son and I with rental assistance during the COVID-19 pandemic and Alex consistently continues to check in on my son and I asking if we need anything else. We were truly blessed to have Alex assist us and thank you to hip for having such nice and caring workers.”
Hudson Consumer.

“I thank you for your quick response and appreciate receiving the help I needed.”
Bergen Consumer

“You have helped to increase my ability to function independently. Thank you for all your help and for caring!”
Bergen Consumer.

“I am so thankful for the hip staff and everything they have done for me. You are always checking if I have enough food during the lockdown and that I have my health insurance. When you saw that I was sleeping on a chair because my bed broke, you gave me an air mattress, sheets and pillows. I am grateful that you all are helping me get a real bed. If I need something, I know that I can call you. Thank you and God bless.”
Hudson Consumer

“Thank you for the assistance I received
as well as the mask and gloves. Help could not have arrived at a better time. God bless all of you at hip.”
Bergen Consumer.

“My friends at hip are missed and oh how I treasure you all. Thank you for inquiring as to my health and my heart. I miss not having meetings, a gathering of friends and sharing with each other their problems as well as their successes. The hip staff is always going above and beyond and making sure we’re safe. Thank you for that.”
Bergen Consumer.

“It would take me a lifetime to repay all that hip has done for us. We lost our daughter five years ago to cancer. Jennyfer is always keeping tabs on my husband and I and really cares, just like my late daughter would have. She has gone out of her way to assist us. All I can say is she is a true blessing in our lives.”
Hudson Consumer.

“I was so grateful for hip during the pandemic. They checked in on me and made sure I had groceries and was safe. Everyone at hip made me feel like I wasn’t alone – they are truly my guardian angels.”
Bergen Consumer.

“If hip hadn’t helped me with a new air conditioner this summer, I wouldn’t have been able to function independently and maintain my quality of life. Thanks again for all your help!”
Bergen Consumer.

“I would like to say thank you for all the years of assistance with my parents. Since 1998, when my mom was diagnosed with Multiple Sclerosis, hip staff was extremely helpful, assisting both my parents adjust to new life limitations and hip became a resource and support for them. As a daughter living across the country, it was heaven sent to have such wonderful, dedicated people assisting them. They were both grateful for everything. In addition to the love and compassion that the entire staff showed my father after the passing of my mother, the support and dedication was life changing until the end. My family and I wish you all the best!”
Hudson Consumer.

“Thanks for all the support and help that I’ve gotten on my journey to improve my health. I was diagnosed with Stage 5 kidney failure and was in desperate need of health insurance. Jennifer made it possible for me to focus on my health rather than the medical bills that were going to pile up. This invaluable assistance helped me tremendously and for that I could not thank her enough. I wanted you to know also how special you and your organization are. Thanks for not giving up on me through all that all of us have been through this year. Seniors and older people especially need to know that there are others, other than their family, that care. Jennifer Preciado never forgets to call and see how I am doing. She is a very special person.”
Hudson Consumer.

“Thank you for being there for all of us.”
Bergen Consumer

Our Proudest Achievements…

• The Bergen and Hudson CILs provided information and services to 919 consumers, family members, friends and professionals. Although the vast majority resided in Bergen and Hudson Counties, individuals from all areas of New Jersey benefited as well.

• With funding from the Coronavirus Aid, Relief, and Economic Security (CARES) Act of 2020, hip launched the COVID-19 Community Response Program to address food insecurities, provide Personal Protective Equipment (PPE) and emergency rental and utilities assistance, and purchase medical and non-medical devices and technology to assist consumers to access or reconnect with services and supports they needed to remain safely in their communities during the COVID-19 pandemic. These funds provided rental assistance to 8 families who had lost income due to COVID-19 job closings and utilities assistance for 9 families. Tablets and other technology devices were purchased which enabled 12 consumers to participate in virtual classes and Zoom activities and remain connected to the community. 52 consumers received funding for assistive devices and equipment including blood pressure monitors to enable them to practice telemedicine, air conditioners to make their living environments more comfortable as they spent so much time at home, microwave ovens to reheat weekly Meals on Wheels deliveries, and the construction of a ramp at the home of an individual who became an amputee as a result of COVID-19 complications. 56 individuals/families who were experiencing food insecurity received ShopRite gift cards or food deliveries. Consumers also received masks and gloves as well as hand sanitizer and cleaning supplies.

• The Bergen and Hudson CILs partnered with the NJ Division of Developmental Disabilities to provide Support Coordination services. Support Coordinators worked with 133 consumers to assist them in accessing community-based supports and services to enhance their independent living. Efforts were directed in such areas as identifying appropriate programs and providers, facilitating socialization skills and building life experiences with the ultimate goal of securing employment.

• Rehabilitation Technology funding enabled 124 individuals to receive disability-related equipment. Home modifications that increased safety and access in home environments were funded for 23 individuals.

• The Adjustment to Vision Loss Project Peer Support Groups gained many new members this year. In-person groups met monthly in Fort Lee, North Arlington, Washington Township, Jersey City and Secaucus, and then met remotely several times each month after COVID-19 hit. Consumers met to talk with one another to gain emotional support, exchange helpful information, and learn practical solutions to many new challenges, including social distancing. Many consumers have taken the opportunity to learn more about technology in this new virtual era. Consumers also had the opportunity to partake in informative presentations made by professionals in the field offering more knowledge to assist with learning how to live in our “new normal.” Two telephone support groups, with participants from all regions of the state, continued to meet and expand on a biweekly basis. One group is for young adults under 30 and the other is for individuals over the age of 30.

• Care Management programs in both CILs provided assessments and linkages to financial benefits and community-based services such as Food Stamps, prescription assistance, Meals on Wheels, Medicaid and many other resources which enabled 153 individuals to live independently in the community.

hip also provided case management services through the statewide Traumatic Brain Injury Fund. This Fund, which receives its revenue from a $.50 surcharge on motor vehicle registrations, purchases services and supports to enable individuals who have been impacted by a traumatic brain injury to live independently in the community.

• The Youth Transition Case Management Program in Hudson County provided individuals age 16 through 24 both short-term and long-term services in order to remain in the community, increase their independence and successfully access adult services. This year 42 individuals and their families received services. The program provided information, resources, advocacy and support to enable young adults with disabilities to optimize control over their lives and increase their knowledge and skills.

• The Hudson CIL staff conducted 2 parent workshops and participated in 2 transition fairs for high school students and parents in Hudson County. Youth transition workshops were provided to approximately 40 students and parents in English and Spanish. Although the pandemic impacted service delivery, hip staff continued to outreach to all high schools in an effort to provide information and link students and parents to available supports and post-secondary educational services.

• The Hispanic Outreach Project provided all independent living skills to the Spanish-speaking community through the efforts of bilingual staff. Linking consumers to financial benefits such as medical/prescription coverage and providing assistance in preparing for re-certification for housing and/or Food Stamps were frequently requested services.

• The Creating Livable Accessible Spaces and Solutions (CLASS) Project, funded by the Bergen County Division of Community Development, collaborated with the 5 Age Friendly Bergen County towns to offer independent living skills assessments to facilitate the ability of seniors to remain in their homes.

• A grant program funded by the Polio Network of New Jersey continued to be available to assist individuals throughout the state who have been affected by post-polio syndrome. Financial assistance can be provided for home modifications that enhance accessibility as well as the purchase of mobility aids.

• Braille by Multimedia Transcription Service continued to convert elementary, high school and college-level textbooks and exams into braille format, giving countless students across the country the ability to be on the same “page” as their sighted peers. While this year was certainly unique as many students were learning remotely rather than physically in the classroom, Braille by MTS worked hard from home and later in the year back in the office to provide the braille books requested by schools. Everyone at MTS is looking forward to working on projects for the community once again as soon as community activities such as theatre performances and museum visits can safely resume.

hip conducted 357 Access Link eligibility interviews during this fiscal year. This NJ Transit program was established to provide public transportation to people with disabilities who are unable to use the fixed route bus services.

• The Eileen Goff Legacy Fund as well as Our New Journey are programs funded exclusively through private donations. The Eileen Goff Legacy Fund provides financial assistance to individuals and families with compelling needs when one-time support can make a difference in their lives and no other funding is available. This year, the Eileen Goff Legacy Fund provided funding for assistance towards food, repair of a wheelchair-accessible van, and the purchase of a prosthetic leg. Our New Journey offered assistance and encouragement to families faced with the onset of illness or disability by providing caregiver peer-to-peer support, individual guidance directed toward the understanding of personal needs and limited financial support for direct care assistance.

• Empowering Women, a peer support group for women with disabilities, played an important role for many women who benefited by sharing successes and challenges. This group, which has grown over the past year, met monthly to exchange helpful information and socialize until the COVID-19 pandemic began. Group activities included Arts and Crafts such as pottery painting and chocolate making. The women enjoyed a healthy luncheon and learned a few new recipes. The group took advantage of talks about financial planning, healthy lifestyles and alternatives to domestic violence.

• Continuing this year until the COVID-19 pandemic began was a partnership that hip formed with the bergenPAC in Englewood. Through their Arts Access Program, hip members received approximately 145 free tickets to many diverse performances, including American Pop, The Nutcracker and Deepak Chopra. We look forward to re-starting this program once restrictions are lifted and bergenPAC can welcome audiences again.

• The 2019 holiday season was brightened for many consumers due to hip’s affiliation with the generous parishioners of St. Peter the Apostle Church in River Edge and the individuals in the community who participated in the Volunteer Center of Bergen County’s “All Wrapped Up” holiday gift-giving program. These wonderful people enabled hip to distribute hundreds of gifts and thousands of dollars in gift cards to individuals and families who otherwise would not have had a holiday celebration.

• The Holiday Party was enjoyed by both Bergen and Hudson consumers, families and friends. Unfortunately, due to the COVID-19 pandemic, all other in-person leisure activities, including the Summer Picnic, were cancelled in this reporting year.

hip continued to be a host site for the Easter Seals Senior Community Service Employment Program (SCSEP) in which two participants worked in the Bergen office. In addition, hip supervised a student intern from Ramapo College.

• Community Outreach – During the year all staff were called upon to represent the CIL in both counties at fairs, events and exhibits concerning senior services, care management and student transition. The President/CEO sits on The Bergen County Workforce Development Board (Executive and Abilities Committees), The Bergen County Human Services Advisory Council (Adult Services Committee), The Bergen County Division of Disabilities Advisory Committee, The Bergen County Elder Abuse Community Coordinated Response Team, and the Hackensack Area Chamber of Commerce. The Executive Director of Hudson hip sits on the Hudson County Human Services Advisory Council, the Project Search Committee and the Hudson County Office of Disability Services Advisory Committee.

hip STAFF

Brian Fitzgibbons MPA, CRC – President/CEO

Trish Carney – Vice President/CFO

BERGEN CENTRAL OFFICE

Thanasis Aspras – Social Work Intern.

Joanna Benthall – AVL Peer Support  Group Coordinator.

Nicole Clark – Care Manager.

Tamara Clark-Gill – Care Manager.

Trisha Ebel – Vision Loss Specialist.

Barbara Farrell – Office Assistant.

Linda Horvath – Office Assistant.

Jayne Jacobs – MTS Project  Coordinator.

John Lampert-Hopkins – Multimedia Transcription Service.

Pedro Martin – Webmaster.

Kathy Moore – Office Assistant.

Mary Mulvaney – Care Management.

Mary Mulvaney – Care Management Supervisor.

Diomayra Ramos – Social Media Intern.

Victoria Robbins – Care Manager.

Kathy Rohr – Multimedia Transcription Service.

Ryan Roy – Office Intern.

Marie Sawyer – AVL Peer Support Group  Coordinator.

Barbara Schmitt – Office Assistant.

Shoshana Stubin – Care Manager.

Stephanie Thomas – Office Assistant.

Maria Valentin – Rehabilitation Technology.

HUDSON COUNTY SATELLITE OFFICE

Marily Gonzalez – Executive Director.

Natalie Alave – Case Manager.

Angela Arboleda – Case Management Supervisor.

Celia Chavez – Case Manager.

Van Dautruche – Support Coordination Supervisor.

Jennyfer Paniagua – Youth Services Case Manager.

Alejandro Paredes – Case Manager.

Jennifer Preciado – Case Manager.

Maria Smith – Independent Living Services Assistant.

hip CONSULTANTS

Gillian Addison – Multimedia Transcription Service.

Debbie Baker – Multimedia Transcription Service.

Barbara Conklin – Graphic Design and Production.

Regina Jones – Multimedia Transcription Service.

Adam Krass – Assistive Technology.

Frank Lampert-Hopkins – Multimedia Transcription Service.

James Fee Langendoen – Technology Consultant.

Francesca Lewis – Multimedia Transcription Service.

Ginger Mabey – Multimedia Transcription Service.

Thelma Smith – Multimedia Transcription Service.

 

LIFE MEMBERS

Anonymous.

Paul Aronsohn.

Annie Been.

Darrell Bethea.

Trish Carney.

Kay Chase.

Lillian Ciufo.

Barbara B. Comerford, Esq.

Marie & Mike Cook.

Jim & Jean Csaposs.

Carol Dass.

Barbara Dublin.

J. Robert Duffy.

Patricia & Dave Ebel.

Lottie Esteban.

Betty Fetzer.

Richard M. Hodgman.

Joan F. Klug.

John Koch.

Chili Li.

Gloria Lieberstein.

Roy Lippin.

Joyce & Leonard Malech.

Ann Melone.

Dr. Frances Meyer.

Marianne Pigoncelli.

Beverly & Dick Ryan.

Donn Slonim.

Michael Smith.

Jeffrey St. Germain.

John Stanik.

Carol Viceconte.

Anne Burton Walsh.

Philip & Linda Webster Cennerazzo.

Janice Willett.

Richard S. Wolfman.

Anthony & Mary Yorio.

 

BENEFACTORS

Bergenfield Lions Club.

Michael & Marie Cook.

Lottie Esteban & Family.

Ms. Genevieve Farrell & Mr. Robbie Fisk.

First Presbyterian Church of Hackensack.

Kaplen Foundation.

River Edge Lions Club.

Beverly Ryan.

Lillian P. Schenck Fund.

Donn Slonim.

St. Peter the Apostle Church, River Edge.

FUNDING SOURCES

Bergen County Community Development.

Bergen County Department of Human Services.

Coronovirus Aid, Relief and Economic Security (CARES) Act of 2020.

Hudson County Department of Health and Human Services.

New Jersey Department of Human Services Traumatic Brain Injury Fund.

New Jersey Division of Developmental Disabilities.

New Jersey Transit ACCESS LINK Project.

Polio Network of New Jersey – Alan and Peggy Ruprecht Memorial Fund.

U.S. Department of Health and Human Services – Administration for Community Living.

In addition to the funding sources noted above, hip also has contracts with many school districts across the country for the production of braille textbooks.

2019-2020 INCOME

Government Contracts $725,068
Membership $4,170
Contributions $15,390
Foundations $6,000
Program Fees $5,269
MTS Program Fees $79,640
Fundraising $688
Special Agency Projects $411,279
Miscellaneous Income $828
Client Assistance $127,642
Total Income $1,375,974

2019-2020 EXPENSES

Personnel $922,069
Consultants $57,485
Supplies $54,557
Program Costs $9,225
Transportation $9,096
Occupancy $161,475
Training $2,711
Miscellaneous Expenses $11,063
Client Assistance $138,452
Total Expenses $1,366,133

hip also has a Diversified Portfolio of Invested Assets

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New Jersey Legislative Disability Caucus Backgrounder

New Jersey Legislative Disability Caucus Backgrounder

New Jersey Legislative Disability Caucus Backgrounder

The establishment of this Bi-partisan Legislative effort represents the hard work of many disability advocates. We at hip support this initiative and look forward to enhancing our communication with our elected officials and program leadership.
                                                                                               Brian Fitzgibbons

November 2020

New Jersey Legislative Disability Caucus Backgrounder  

PURPOSE:  

To serve as a bipartisan forum within the New Jersey Legislature for lawmakers and their staff to consider the impact on the disability community when shaping ALL public policies in the Garden State through increased awareness and a greater understanding of the complexities of the disabilities service system and issues affecting individuals with disabilities and their families.  

25.6% of adults in the U.S. have some type of disability.

24.6% of adults in New Jersey have some type of disability.

Did you know?
Disability cost in healthcare expenditures are $1.4 billion per year** in New Jersey.

THE FACTS:  

  • According to the U.S. Centers for Disease Control and Prevention, approximately 61 million Americans – 25% of the population – have a disability that “impacts major life activities”. 
  • Approximately 25% of adults in New Jersey identify as having some type of disability. This equates to 2,227,250. * 
  • Despite progress, adults with disabilities in New Jersey and across the country continue to experience significant differences in health characteristics and behaviors compared to adults without disabilities. ** 
  • The jobless rate for persons with a disability continues to be about twice as high as the rate for those without a disability. *** 
  • People with disabilities live in poverty at more than twice the rate of people without disabilities. ****

12.5% of all US males and 12.8% of US females have a disability

HOW THE CAUCUS WORKS:  

Individuals with disabilities, their families and organizations that serve, support and advocate for individuals with disabilities in New Jersey will be a resource to the NJ Legislative Disability Caucus, providing education and programming as needed. Legislators who join the caucus agree to be champions for individuals with disabilities in New Jersey by meeting with them in their district offices; participating in quarterly education forums; and above all, promote policies to improve the lives of people with disabilities and consider the impact on the disability community in shaping all public policies in New Jersey.  

* Disability & Health U.S. State Profile Data for New Jersey (Adults 18+ years of age), Centers for Disease Control.  

** Disability-associated healthcare expenditures are presented in 2006 dollars as reported in Anderson et al, 2010. This value represents approximately 26% of total healthcare expenditures for the state of New Jersey.  

*** Current Population Survey (CPS), US Department of Labor’s Office of Disability Employment Policy, February 2020.  

****Disability Poverty Connection Report, National Council on Disability, October 2017 

 

Founding Caucus Members  

Senator Stephen M. Sweeney – Chair  

Senator Anthony M. Bucco  

Senator Kristin M. Corrado  

Senator Patrick J. Diegnan, Jr.  

Senator Vin Gopal  

Senator Thomas H. Kean, Jr.  

Senator Fred H. Madden, Jr.  

Senator M. Teresa Ruiz  

Senator Troy Singleton  

Senator Joseph F. Vitale  

Assemblyman Daniel R. Benson  

Assemblywoman Annette Chaparro  

Assemblyman Nicholas Chiaravalloti  

Assemblyman Ronald S. Dancer  

Assemblywoman Joann Downey  

Assemblywoman Aura K. Dunn  

Assemblyman Louis D. Greenwald  

Assemblyman Eric Houghtaling  

Assemblywoman Valerie Vainieri Huttle  

Assemblywoman Pamela Lampitt  

Assemblywoman Yvonne Lopez  

Assemblywoman Nancy F. Munoz  

Assemblywoman Carol A. Murphy  

Assemblywoman Holly T. Schepisi  

Assemblyman Adam J. Taliaferro  

Assemblywoman Britnee N. Timberlake  

Assemblyman Anthony S. Verrelli  

Assemblyman Andrew Zwicker 

 

2021 Issue Briefing Schedule  

Virtual or in Trenton – One hour for Caucus members and their staffers 

 January 26 @ noon – Covid and the Disability Community  

April 27 @ noon 

 July 27 @ noon  

October 26 @ noon 

 

The New Jersey Council on Developmental Disabilities (NJCDD) is proud to announce the Supporting Agencies for the NJ Legislative Disability Caucus:  

New Jersey Council on Developmental Disabilities  

Autism New Jersey  

Brain Injury Alliance of New Jersey  

New Jersey Association of Mental Health & Addiction Agencies, Inc. (NJAMHAA)  

New Jersey State Independent Living Council  

Ombudsman for Individuals with Intellectual or Developmental Disabilities and Their Families  

SPAN Parent Advocacy Network  

Supportive Housing Association of New Jersey  

The Alliance for the Betterment of Citizens with Disabilities (ABCD)  

The Arc of New Jersey  

The Boggs Center on Developmental Disabilities, Rutgers Robert Wood Johnson Medical School  

The New Jersey Association of Community Providers (NJACP) 

New Jersey Legislative Disability Caucus Backgrounder

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hipNews Summer 2020

hipNews Summer 2020

hip Newsletter Summer 2020

INDEX

Thank You!

hip would like to thank ALL of the essential workers on the front lines of this pandemic. Every single one of you is a hero and we are very grateful for your efforts.

From The Desk Of The President

Just as we were finalizing our plans for hip’s 40th Anniversary we got the order from the Governor to self-quarantine. Fortunately for us a great deal of our work takes place on the phone or in the field so with some modifications we have been able to work remotely. We have been able to coordinate services with our county and state partners and even stay connected with many of you and we want that to continue. So, in the tradition of hipNews we have curated information that will be helpful as we move forward.

If, as the song goes, that “every cloud must have a silver lining” ours has been The CARES Act. We have received federal funds to cover COVID–19 related services that are designed to keep you safe, healthy and connected to your communities. Our entire staff in both offices will continue to work within their specific program areas and will be available to offer all necessary independent living services.

Be safe and stay in touch,

Brian

COVID-19 Community Response Program Funding Application

Welcome to the COVID-19 Community Response Program, administered by Heightened Independence and Progress (hip) in Bergen and Hudson Counties. The program will address food insecurities, personal protective equipment, assistive devices (medical and non-medical), transportation, in-home support services, and emergency rental and utility assistance related to COVID-19. In order for us to be more efficient in evaluating your request for funding, we will need your cooperation and diligence. Our program coordinators are available to assist you.

The following items must be included with the application:

  • APPLICATION: Fully complete the 3-part application, all information is required. 
  • MEDICAL PRESCRIPTION: It should state your disability (COPD, end stage renal failure, lung cancer, diabetes, heart disease, developmental delay, etc.) and the reason you need the item you are requesting. The doctor, or other health care provider, may fax it directly to us. 
  • ONE-TIME EMERGENCY RENTAL OR UTILITY ASSISTANCE: Please include a copy of the lease, utility bill and documentation of past due amount. 
  • PROOF OF INCOME is required. Submit most recent income verification (Social Security, pension, wages, etc.). We will require information about income changes due to COVID-19 circumstances. 
  • If you are applying for an air conditioner or home modification, a letter from the landlord, granting you permission to obtain/install item, must be included. The program does not provide installation. Installing air conditioners is the consumer’s responsibility. You may call the ASK Umbrella Program at 1-973-200-4499 for air conditioner installation assistance. 
  • The COVID-19 Community Response Program can also provide one-time $250 funding towards the purchase of incontinence or wound care supplies for individuals in need.

INDEPENDENT LIVING PLAN is a tool used to assist consumers to meet their goals. Please complete the section that is most appropriate.

Due to the high volume of applications we receive, it is very important that you complete and email this application promptly. Please note that hip cannot reimburse you for any paid bill(s). hip makes payments directly to the vendor. We will not be able to process your request until all documents are received.

Each application will be reviewed, and funding will be determined based on need.

hip has 2 locations to serve the community. If you have any questions or need assistance completing the application, please contact us at the office in your county. All contact information is on the left side of the front page.

A Note from the Hudson CIL Executive Director

To our consumers, their families and colleagues,

It’s hard to believe it’s been almost 4 months since we closed our office to outside visitors. We made the decision to close due to the Stay-at-Home order because there is nothing more important to us than the health and safety of our consumers, colleagues and staff.  As the situation with the COVID-19 virus continues to evolve, hip is committed to developing ways to provide services for people with disabilities in the safest, most efficient manner possible. We understand there are needs in our community that are not being met and we are working to close those gaps.

hip’s staff will continue to contact all current and former consumers over the next days and weeks to check-in, provide information, and help connect consumers and their families to services and resources, so that they can obtain what is needed during these difficult times. We are keenly aware of the challenges faced by many who lack access to food, protective equipment, medications, medical equipment, and other life-sustaining necessities and we are dedicated to helping. hip’s staff and I want to make sure we are connecting and reaching all those in need. As we move towards the goal of safely reopening, we continue to provide all services and programs remotely and extend our support to all.

Marily Gonzalez

How hip Helps…

All of us at hip have been working hard to make sure our consumers are safe and supported during this difficult time. Here are just a few examples.

LC contacted hip in a desperate attempt to receive assistance with her unemployment claim. She has been a lawful resident for the last twenty-three years; however, she had no idea how to obtain any services. LC has osteoarthritis in her hands which has caused her to have a difficult time obtaining a job. At the time, LC worked at a supermarket but due to many preexisting health conditions, she left the establishment in fear of contracting COVID-19. The Care Manager at hip assisted her by creating an email address and opening her unemployment claim. LC was granted PUA unemployment as well as the additional $600. The Care Manager also helped LC apply for health insurance and food stamps. LC is thriving with all of the services she is now receiving with help from hip.

MS is a man in his 40s with Down syndrome and early-onset Alzheimer’s disease. He lives at home with his mother, and as his day program has been closed since mid-March, his mother is constantly faced with his progressive cognitive deterioration. MS refuses to wear a mask, so his mother cannot take him anywhere, and the days at home with him are very long. She was very grateful to be referred to a virtual support group for caregivers of individuals with early-onset dementia. Also, his hip DDD Support Coordinator provided his mother with registration information for a series of guided sculpting workshops on Zoom designed for individuals in the early stages of dementia and their caregivers, with all supplies delivered to participants’ homes.

SE is a 79-year-old woman who was referred by another hip consumer, who has spoken highly of all hip workers. SE started to feel uncomfortable with driving long distances due to having trouble navigating the highway. She has struggled with a brain aneurysm and pain in her left knee. SE had contacted hip in hopes of acquiring transportation to ease her nerves about her upcoming neuro appointment in Englewood. With the help of Access Link, we have acquired her temporary access to their services. SE is grateful to hip for helping her make her next appointment stress-free.

hip received a referral from Mrs. S, Hudson county resident. Her daughter G is 16 years old and has a rare form of muscular dystrophy plus a cognitive disability. Due to G’s physical disability, her mother and grandfather had to carry her in order to get her in and out of their home. Her grandfather had recently passed away from COVID-19 and her mother was finding it difficult to carry her alone. Financial assistance was needed for a stairlift as G’s grandfather’s death also left G and her mother without his income. The hip Care Manager will help this family complete a COVID-19 Community Response Program Funding Application.

hip has assisted many consumers with arranging grocery deliveries, applying for Meals on Wheels, and obtaining cleaning supplies, paper products, and sanitizing wipes.

How to Get Tested For COVID-19 In New Jersey 

Testing is available to everyone in New Jersey.

Our first responders and health care workers are saving lives every day – and so can you.

Do your part to protect yourself, your loved ones, and your community by getting tested for COVID-19.

You could have COVID-19 and not even know it. Find out if you have COVID-19 at any of the 200+ testing sites across New Jersey.

It’s quick and easy. You don’t need insurance and free testing is available. Anyone who wants a test, can now get one.

It’s especially important to get tested if:

  1. You are experiencing symptoms (fever, cough, shortness of breath, chills, sore throat, muscle pain, shivering, headache, or new loss of taste or smell)
  2. You have been in close contact with someone who tested positive for COVID-19
  3. You are an essential worker (health care worker, first responder, food service worker, or transit worker)
  4. You were recently in a large crowd where social distancing was hard to maintain.

 

Visit https://covid19.nj.gov/pages/testing to learn more about checking symptoms, finding a testing site, and more.

Pandemics, Visual Impairment and How to Navigate the New Normal

A pandemic in modern times presents unique challenges for people with visual disabilities. Some of the concepts and coping strategies we have learned will require some reworking. On April 4, 2020, I read an article on the BBC website entitled “Coronavirus: Being blind during the pandemic” by the journalist Kate Pounds, who has vision loss (https://www.bbc.com/news/disability-52118942). She spoke to several blind and visually impaired people in the United Kingdom and they shared their experiences and problems they were encountering during the coronavirus pandemic. As a student in the Orientation and Mobility program at Salus University, as well as a man with low vision, I would like to share my thoughts and strategies on how the blind and visually impaired community can navigate this new normal.

Ms. Pounds’ article touched on several different themes; the first of which is how social distancing has impacted the sighted public’s willingness to render assistance to blind and visually impaired people. The interviewees indicated they found it more difficult to obtain assistance with shopping and in finding assistance to cross busy or complex intersections. During this crisis, blind and visually impaired shoppers may have to call ahead and let the retailers know that we are coming and what we’re looking for. Many retailers have also established set traffic patterns within their stores, and as good citizens we should locate an employee and have them identify the traffic pattern. Even if many sighted customers are not following the pattern, we can hold the moral high ground if unpleasant encounters occur. Going forward, an established traffic pattern can be very useful in obtaining orientation information about the store. While these techniques curtail spontaneous shopping, they get the blind and visually impaired shopper in and out of the store as quickly as possible and avoid prolonged exposure.

Independent travel outside of the home can present a significantly more complex dilemma. In many communities the amount of traffic has significantly decreased for both automobiles and foot traffic. Due to the decline in traffic, the sonic environment has also changed. Blind and visually impaired travelers who rely on sighted guides to cross certain intersections may have to wait longer for assistance. You may also consider changing your route to an intersection that is controlled by a traffic signal or you may want to cross intersections at different times to increase or decrease the traffic noise in accordance with your comfort and levels of risk. This is especially true if your sonic landmarks or cues have changed significantly. There is one other factor that should be taken into consideration. According to traffic data, although the number of cars on the road has decreased very significantly, the amount of crashes per mile has remained the same or increased. Drivers are speeding more and paying less attention to motor vehicle rules. As visually impaired travelers, we should go slower, pay greater attention to the environment and make ourselves as visible as possible.

The items we use to protect ourselves also present unique challenges to people who are blind and visually impaired. The facemask can muffle speech on both sides of the conversation. In addition, the fresh elastic on some of the masks can distort the shape of the ear which can present an issue with fully appreciating the sonic environment. The choice of personal protective equipment will require more attention to these details. As members of our community, we should not be afraid to unpack our self-advocacy tool kit. Whenever possible, have your script ready and remember the tripod of self-advocacy: be polite, be firm and be persistent. Just because the world is crumbling around us does not mean we cannot express ourselves as equal citizens and get what we need and want.

One of the more harmful aspects of social distancing that can affect the blind and visually impaired community is social isolation. So many of the places that we used to congregate for our social meetings and networking opportunities have closed or come to a stop. Many of our friends and family are unwilling or unable to come out and visit with us. Caregivers and those who used to provide us with assistance are also unwilling to come into the outside world. I strongly encourage members of our community to reach out using the telephone or text messaging as well as the assorted video messaging services to provide social contact and assistance. There are also some smart phone applications that can also provide assistance and valuable social interaction. Zoom and FaceTime are great ways to have a social gathering. Also, you can join a peer support group or maintain your existing relationship with the ones you already are involved with.

The current crisis could significantly impact blind and visually impaired people’s independence and daily routine. There are workarounds that we can use to reduce the impact that social distancing imposes upon us. Remain steadfast to the values of the independent living movement and do not be afraid to speak up for yourself. Be persistent in expressing what you need and what you want.

Furthermore, this could be an opportunity for our community to set forth guidelines and standards that we would like to see implemented to promote the independence of people who are blind and visually impaired. The strength and tools that we develop during this time can be a great asset in systemic advocacy for the future.

Doug Gilbert

Bored at Home?

Bored at home and looking for a fun, outdoor, socially distanced activity? Check out www.traillink.com and find a nearby trail! Sorted by town, the website shows each trail’s terrain surface, length, whether the trail is wheelchair-accessible, if bikes are allowed, and also includes reviews and ratings for each trail. Enjoy some time outdoors!

Beware of Robocalls, Texts and Emails Promising COVID-19 Cures or Fast Stimulus Payment

Coronavirus scams are spreading nearly as fast as the virus itself. As of June 4, the Federal Trade Commission (FTC) had logged nearly 36,000 fraud complaints related to the outbreak. Victims have reported losing $46.2 million, with a median loss of $454.

Fraudsters are using the full suite of scam tools – phishing emails and texts, robocallsimpostor schemes and more – and closely following the headlines, adapting their messages and tactics as new medical and economic concerns arise. For example, federal authorities are warning about scams aimed at siphoning Paycheck Protection Program dollars earmarked to help small businesses survive the pandemic.

Here are some other types of coronavirus scams to look out for:

  • In-demand products and bogus cures
  • Financial phonies
  • Phishing scams

For more information on these scams, read the full article at:

https://www.aarp.org/money/scams-fraud/info-2020/coronavirus.html

 

The Mask Dilemma

COVID-19 has altered our lives in many ways, one of which is making masks a new fashion statement. If you only have use of one hand because of a disability and there is no one to assist you, it could be a problem. And with problems, you look for solutions.

Governor Murphy issued the order that states if you are going to use public transportation in the State of New Jersey, you MUST wear a mask, except if you have a disability that prevents you from doing so. While I found this a bit contradictory, I asked on my Facebook page if anyone knew where I could get masks, and I had people dropping off and sending me face

masks that I couldn’t put on by myself. I became frustrated because I have cerebral palsy and only have use of one hand. Social distancing means staying away from people, so while staying at home, Trish Carney from hip called to touch base with me and see how I was doing. I happened to mention the difficulty I was having with the masks I was receiving. Trish informed me of a colleague in the Hudson hip office who was sewing masks with rubber adhesive that goes over your head, which makes it a lot easier to put on. Thank you, Maria Smith, for creating this custom mask for me.

Sometimes if you have a problem you just have to keep asking for assistance, and hopefully you can get to the correct person. Thanks to Trish Carney, I did. Let’s all be smart and safe.

Austin Epstein

 

hip Mourn…

Our hip family lost the following members in recent months:

Bob Ciavaglia (former Board member)

Gail Geresi

Arthur Jusu-Davies

Eileen Martin

Janice Preschel

Judith Rice

Carmen Rosado

Susan Stiles

Christopher Watten

Beatrice Williams

We also mourn all those lost to COVID-19 including relatives of several hip staff members. 

Reminder! Be Counted for CENSUS 

  • The census determines the number of seats each state will have in the U.S. House of Representatives and they are used to draw congressional and state legislative districts.
  • The census provides critical data to lawmakers, business owners, teachers, and many others and that data is used to provide daily services, products and support for your community.

 

Calendar Raffle Update

The 66 Day$ of $ummer Calendar Raffle has been postponed but we look forward to hosting it later this year when it becomes possible! Stay tuned for updates!

All Things hip

For information on all things hip, please follow us on Facebook and check our website for updates! www.hipcil.org

In our effort to supply critical information to consumers as quickly as possible, hip is developing a database of email addresses. Regular mail is moving more slowly now, so it is important for us to have other means of communicating with you. Please send an email to contactme@hipcil.org with your personal email address or text the word hip to 22828 (message and data rates may apply) and we will add you to the database.

 

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COVID-19 Update from hip

COVID-19 Update from hip

COVID-19 Update from Heightened Independence & Progress (hip) Center for Independent Living 

Updated 4/8/2020

Heightened Independence & Progress (hip) continues to monitor the ongoing crisis as it unfolds. We want you, the individuals and families we serve and our social service partners to know that while the hip team are working remotely to comply with the social distancing mandate, we are here to support you during this challenging time. As a Center for Independent Living, it is our role to ensure individuals with all types of disabilities of all ages have access to information and resources. While our staff are all working remotely, we have the technology to allow us to maintain operations offsite. We will continue to work in this manner until further notice.  

 The hip team have been contacting the consumers that we serve in Bergen and Hudson counties to continue our efforts in supporting them and ensuring they have all the basic necessities like food, medication, etc. and are prepared to weather this emergency. 

 We understand the toll that this situation is having on the health and wellness of the individuals we serve and the continued disruptions this has caused for all of us. As such, we want to play our part in minimizing any further risk. All social and recreational events, educational seminars and drop-in visits are cancelled until further notice. All visits are being handled via telephone during this timeframe. Many of our programs have specific protocols that must be adhered to and we ask that you reach out to your specific case manager with any questions you may have. Staff are checking their office voicemail regularly. 

 The hip Board of Directors and administrative team will continue to monitor the situation as it develops and keep you apprised of any changes as they occur. All communications will be posted on our website and Facebook page. 

On behalf of the entire hip team we wish you all much health as we get through these unprecedented times. As we have heard so many times recently, we will get through this together. May all of you continue to be safe and well.

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